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Discover a wide range of tools, guidance and information to support meaningful public involvement and engagement with data and statistics.

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Co-production of research direction and strategy  

The National Centre for Population Health and Wellbeing Research provides a best practice guide to support researchers with co-production, along with three workshop reports that build on this guidance. These reports share work with young people to highlight research topics of importance.
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Voices in data: the power of public involvement in data research

This community essay shared by the British Science Association explores the challenges of effectively engaging communities with administrative data research. Providing practical advice and examples of involving people in data research to ensure it accurately captures and reports the experiences of the people behind the data.
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A starting guide to Equity, Diversity and Inclusion (EDI) for public engagement professionals

National Coordinating Centre for Public Engagement (NCCPE) lay out a set of principles and suggested actions to guide public engagement professionals to embed EDI into their work.
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Equity, diversity and inclusion in public engagement

The University of Warwick provide guidance on what equity, diversity and inclusion is, why it is important in public engagement and tips on how to get started, as well as further resources.
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Public Involvement in Research Impact Toolkit (PIRIT)

A practical planner and tracker created by Cardiff University to support the integration, impact assessment and reporting of public involvement in research.
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Mapping patient experiences

The Patient Experience Library pulls together patient experience evidence from government bodies, health charities, patient voice organisations, academic institutions and more into evidence maps. These maps help researchers and research funders identify where the evidence base is saturated and where gaps remain.
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What do we mean by public benefit? (2022)

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.
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Equality Impact Assessment (EqIA) Toolkit

National Institute for Health and Research (NIHR) Applied Research Collaboration East Midlands have developed a toolkit to support equality analysis, practice and outcomes. An EqIA is a process that helps determine and understand how what we do may affect people differently.
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How routine data linkage has been used in research

The Centre for Trials Research at Cardiff University share a series of animations available in both English and Welsh to demonstrate how health data can be linked and applied within research.
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